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ISBN: 9781773634845

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Losing me, While Losing You

Caregivers Share Their Experiences of Supporting Friends and Family with Dementia

Losing Me, While Losing You is a long-needed resource to those providing care for people living with dementia — and for those providing care to the caregivers. In this book, caregivers speak from their own experiences of caring for loved ones with dementia; they cover when they first noticed behavioural changes, what they did and how their roles changed when they received the diagnosis, how the experiences changed their perceptions of themselves, especially in cases where important ones no longer recognized them or their, often long-standing, relationships. The caregivers also talked about what resources, if any, were available to support them through the caregiving journey and what recommendations they would make to government policymakers and to others in similar situations. This book is unique in that it documents the personal lived experience of loss which family, friends and caregivers go through as their roles, expectations and images of self are changed throughout the caregiving process.

Contributors

Jeanette A. Auger

Jeanette A. Auger is a professor emeritus and adjunct professor in the Department of Sociology at Acadia University.

Diane Tedford-Litle

Diane Tedford-Litle is a women’s activist and ex-palliative care volunteer with the Victorian Order of Nurses in Nova Scotia. She has volunteered with a number of organizations including the Seniors Network, the Hospice Consultation Committee and the Gerontology Association of Nova Scotia.

Brenda Wallace-Allen

Brenda Wallace-Allen is an instructor at Nova Scotia Community College.

Chapter Title Contents Contributors Pages Year Price

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This chapter contextualizes the book by providing historical and demographic details about dementia. ; ; 13 $1.30

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In this chapter, caregivers share stories about noticing – or refusing to notice – the onset of a loved one’s dementia. Since stigma surrounds Alzheimer’s disease and … ; ; 54 $5.40

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This chapter concerns caregiver’s responses to their important one’s diagnosis, the impact becoming a full-time caregiver had on their own health and wellness, and the effect this had … ; ; 42 $4.20

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In this chapter, caregivers discuss their sources of assistance and support as they embarked on their shared journey of caring for loved ones with dementia. While some had family nearby, others … ; ; 28 $2.80

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In this chapter, the editors ask caregivers to identify whether or not their experiences as a caregiver had affected how they feel about themselves. They also ask what recommendations they would … ; ; 25 $2.50

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In this chapter, the editors of the volume explore ways in which “gaps” are being addressed in the field of dementia care. ; ; 38 $3.80

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This chapter explores how caregivers lose some of themselves through the loss of their loved ones to dementia. ; ; 4 $0.40