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ISBN: 9781551527383

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Care Work

Dreaming of Disability Justice

In their new, long-awaited collection of essays, Lambda Literary Award-winning writer and long-time disability justice activist and performance artist Leah Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centres the lives and leadership of sick and disabled queer, trans, Black, and brown people, with implications and gifts for all. Leah writes passionately and personally about creating spaces by and for sick and disabled queer people of colour, and creative “collective access” — access not as a chore but as a collective responsibility and pleasure — in our communities and political movements. Bringing their survival skills and knowledge from years of cultural and activist work, Piepzna-Samarasinha explores everything from the economics of queer femme emotional labour, to suicide in queer and trans communities, to the nitty gritty of touring as a sick and disabled queer artist of colour.

Care Work is essentially a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of colour are doing to find each other and to build power and community, and a toolkit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Powerful and passionate, Care Work is a crucial and necessary call to arms for all.

Contributors

Leah Lakshmi Piepzna-Samarasinha

Leah Lakshmi Piepzna-Samarasinha is a queer disabled nonbinary femme writer and cultural worker of Burger/Tamil Sri Lankan and Irish/Roma ascent. Her books include the memoir Dirty River: A Queer Femme of Color Dreaming Her Way Home, shortlisted for Lambda Literary and Publishing Triangle Awards, and the poetry collections Body Map and Love Cake. A lead artist with the disability justice performance collective Sins Invalid, she teaches, performs, and lectures across North America. Raised in Worcester, MA, she divides her time between T'karonto and South Seattle.
Chapter Title Contents Contributors Pages Year Price

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Thanks and acknowledgements including links to the author’s articles referenced in the book. 5 $0.50

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A short history of the author’s writing practices, the disability justice movement, and the ten principles of disability justice. 15 $1.50

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An essay about how sick and disabled people create care networks to live with autonomy and dignity. 37 $3.70

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A list of skills, or rather the hallmarks of crip emotional intelligence, are examined in detail. 5 $0.50

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An essay about access as a radical form of solidarity (access as an act of love). 5 $0.50

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A history of disabled organizing and community making in Toronto from 1997 to 2015. 18 $1.80

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An exploration of the healing justice movement and the organizing principles of the Healing & Health Justice Collective. 17 $1.70

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Transcription of conversation between the author and E.T. Russian, a white, disabled, genderqueer visual artist, about complicated crip sexuality stories. 7 $0.70

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A call to action: that disability justice must centre the activists at its core and not simply those who pay the movement lip service. 14 $1.40

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The author discusses eight possible fair trades for her emotional labour. 13 $1.30

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The author urges readers to make accessibility central to their events, performances, and art exhibitions, and not simply an afterthought to the creation of their ART. 7 $0.70

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Twenty-eight tips or self-care hacks to help you when you travel. 7 $0.70

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The story behind the author’s memoir, Dirty River: A Queer Femme of Color Dreaming Her Way Home. 9 $0.90

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A frank discussion of suicidal ideation and the hope to create life models that encompass both courage and vulnerability. 7 $0.70

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A letter to Gloria — a Chicana scholar of cultural, feminist, and queer theory — from the author about being a queer femme of colour writer and chronically ill femme. 7 $0.70

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The author asks and discusses the following question: “how…can [we] remake performance culture’s expectations and figure out our own disabled and chronically ill performance ideas … 5 $0.50

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A examination of the intersections between being femme and suicide. 13 $1.30

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An essay championing movements that celebrate disabled, working-class femmes of colour. 7 $0.70

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The author reassures the reader that it’s okay to protect your heart: to build boundaries, to say no, to not reply to emails immediately, etc. 12 $1.20

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The author discusses survivorhood and her belief that she does not want to simply forget her traumas but continually learn from them and grow. 15 $1.50

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A conversation with Stacy Milbern, a disability thought leader with Sins Invalid. 17 $1.70

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Further and resources on resources on topics such as disability justice, emotional labour, suicide, grief/trauma/crisis, chemical injury, and healing justice. 7 $0.70